Last week I discussed how I felt about labels and how I didn't think it was fair for a child's label to dictate the services they receive. This made me think of the label/diagnosis of autism.
Autism is basically diagnosed from a list of things a child
cannot do...
He cannot relate to others.
She cannot communicate appropriately.
He cannot stop obsessing about that toy or TV show.
She cannot handle loud noises.
He cannot handle changes in routine.
She cannot understand the risk of danger.
He cannot stand being touched.
She cannot make eye contact.
He cannot play with toys appropriately.
I hate all the focus on cannot for two reasons.
1. There is no mention of any of the things the child can do! And kids with autism can do some pretty amazing stuff! I admit some of what they can do may be unconventional but how many of us can repeat a Disney movie verbatim, determine what day of the week someone was born on just by knowing the date, or recite the first 100 players drafted in the NFL including where they went to college and their position?!?
2. It implies that the child will never be able to do any of these things. And from experience I can say this is 100% not true! Although I love teaching all students with special needs, working with children with autism has been remarkably rewarding for me. They have awed me again and again by exceeding expectations. Being able to help a child develop meaningful speech, eliminate difficult behaviors, and/or take interest in their classmates makes my job totally worth it.
I think a lot of what makes my students so successful is intensive intervention. For my kids who are on the more severe end of the spectrum I try to provide 1-3 ABA (Applies Behavioral Analysis) direct teaching sessions daily in addition to group activities (cooking, theme reading, specials). I started out doing ABA before I was even interested in special ed so I am a strong proponent. I wish all of these kids received in-home ABA in addition to what I provide at school. However, unfortunately, a majority of my students come to me at age five with no early intervention. And if they do come with early intervention it is typically preschool which provides no ABA.
I just don't know how in 2012 the awareness is still not out there about intensive early intervention for children with autism... specifically ABA? I wonder what resources doctors give when a child is newly diagnosed? Whose job should it be to educate these parents? Doctors? Parent Advocates? School Districts? It seems like no one is helping these parents unless they do the research themselves. Teachers and parents of children with autism... what have your experiences with early intervention been? Parents, how did you know where to go for help? Teachers, how do you approach parents when you think a child needs more intensive intervention? Perhaps a younger sibling of a student comes in and all of a sudden red flags start going off... what do you do?